FDA Grants Orphan Drug Designation to Gene Therapy Treatment for Angelman Syndrome
Agilis Biotherapeutics and Dr. Edwin Weeber take giant step forward toward a functional cure for Angelman Syndrome. For Further information, read the press
International Angelman Day: What’s on & what you can do
This International Angelman Day. The goal is to raise awareness of Angelman syndrome worldwide, mobilize people to action, encourage fundraising, promote r
Boston on FIRE
What do you do when you are told your child has a rare and debilitating condition and that the science suggests it can be treated or cured, but the researche
Make it Happen
The Federal Government’s Combined Federal Campaign (CFC) season has kicked off and FAST; the Foundation for Angelman Syndrome Therapeutics (CFC #5105
Second Annual Jamie Berkley Memorial Golf Tournament.
By Jason Berkley It’s hard to believe that it has almost been a year since the First Jamie Berkley Memorial Tournament. To say I felt overwhelmed plan
Uncharted Waters – An Update From FAST On The Minocycline Clinical Trial
In March of 2013, the Tampa 24, wrapped up their final visits to Tampa General Hospital for the human clinical trial to test the efficacy of minocycline in t
More than just a wheelbarrow
Most parents of a child with Angelman syndrome (AS) would do whatever it takes to create a new, brighter future for their children and a great deal of us cho
Extraordinary measures
“It is good to have an end to journey toward; but it is the journey that matters, in the end.»~Ernest Hemingway To families of individuals with Angelman S
Be a Hero, Save an Angel
by Jessi-Scott Backer On February 7, 2006 our second child was born. A beautiful baby girl with blonde hair, stunning big blue eyes and extraordinarily fa
Making the Bank Pay
A monumental amount of training is required to tackle an Ironman, our community, with two dedicated running groups; Miles for Smiles and Angel Runners is ete